Casting Nationwide for “Chasing The Cure” – People Looking to Diagnose Their Symptoms

06/10/2019

Chasing The Cure Live.

Location: Nationwide

Type: Docu-series

Seeking real people for “Chasing The Cure Live.” Synopsis: We are currently looking for people from all over the country who have been unable to get a diagnosis for their medical symptoms. Chasing the Cure with Ann Curry invites you to join a growing community of doctors and patients working together to help find answers to emotional, difficult, and potentially unsolvable, medical challenges.

We are tapping into the world of medical crowdsourcing, connecting doctors worldwide, online and on television, to help patients battling everything from life-threatening diseases to unusual ailments that are undiagnosed, misdiagnosed or uncured. This offers unprecedented access and opportunity for doctors around the world to collaborate cross-discipline, as well as at-home viewers.

We are currently looking for people from all over the country who have been unable to get a diagnosis for their medical symptoms; Chasing the Cure with Ann Curry invites you to join a growing community of doctors and patients working together to help find answers to emotional, difficult, and potentially unsolvable, medical challenges.

Ethnicity: All Ethnicities

Payment: Other

City or Location of call: Nationwide
Please submit to: patients@chasingthecurelive.com

This casting notice was posted by: Chasing the Cure Live



38 thoughts on “Casting Nationwide for “Chasing The Cure” – People Looking to Diagnose Their Symptoms

  1. Jennifer Lutz McNulty

    I need your help desperately, been battling illness since I was a young girl.
    I’m 55 now over 21 surgeries heart stopped 5 times. That I remember. I’m 55 my grandchild is 7 only seen her 7 times in my life. Spent millions on medical Bill’s barley get by on disability. I’m aware of some of my condictions but not all so much more wrong. I just need more time so my grandchild can get to know me. Spent 12 years on the sofa crying unable to move from pain. Almost died getting off morphine. My doctor has been no help, hes actually done more harm. Please help me
    Jennifer Lutz

    Reply
  2. Richard DelRossi

    I have a DNA protein issue causing severe muscle wasting or a form of muscular dystrophy and it just took over my body real fast in past 6yrs. I’m 41 but I kinda always new something was different with my muscles but it didn’t really hit me until recently. I was extremely active before this but slowly lost ability to ride my bikes or run my dog along with a list a mile long. It keeps getting worse and I have trouble walking now can not run one step and always feel like I’m dying inside or it feels like everyday I’m in a major car accident and my all my body parts hurt. I’m living the dream where I can’t run no more. My symptoms are are basically my muscles feel like their 110 and dying while my stomach acts like chrohns disease, full body arthritis all the time. East coast Dr do not have a clue. Traveling is hard for me I can’t fly because my equilibrium is so off I get violently sick, I have no inner outer thighs left no chest biceps or much arms left becoming bones and it hurts so much yet no one can see how bad it really is. How do I sign up to be picked.

    Reply
  3. Brandy taylor

    You need to change the name of the show? Are you trying to cure people or looking for people who can’t find a diagnosis?

    Reply
  4. William Dorn

    I was injured five years ago lifting logs for firewood. I have been in constant chronic pain so I had back surgery and had two coflex implants put in. After the surgery I have had horrible pain thru out my body. My legs, arms and face have went numb and I have lost 55 pounds. I am desperate, the surgeon says all my tests look perfect and there is nothing more he can do for me. I had lost all hope till i saw your program. I am 66 years old and would like to have some good times with my wife my daughter and my grandson before the LORD takes me home. Please contact me you could save my life.

    Reply
  5. Deneah Burgess

    My mom Joanne who is 61 has a rare skin disorder called scleroderma which has no cure. She’s had it for about 12 years when her life expectancy was about 2. Her body is creating a shell and because of this she constantly in pain, it’s now effecting her throat to where she can’t eat any thing without choking. Her doctors have even resorted to her giving her self a shot once a week with this “chemo” stuff that they say is supposed to help. But If she doesn’t have cancer why would she be giving herself chemo? Just a step in the right direction would be so helpful. Just Trying to keep my mom Alive.

    Reply
    1. lisa m.

      I fell down 14 steps October 9, 2018. now I have pains in my bones, joints, swollen ankles and knees, walk with a limp, have intestinal issues, broke right wrist, then fell due to knees buckling, broke left wrist, had wrist surgery, and at same time had carpal tunnel surgery which has not recovered properly, keep going back to ortho Dr, go to occupational therapy, nothing helps, 5 months with stiff, almost paralyzed hand. I have osteoporosis, osteoarthritis. have pain in tailbone, but nothing shows up on x-rays. the numbness, tingling etc in my left hand causes mr a lot of anxiety. I cannot use that hand, so cannot drive, etc. I am a widow, have no one who understands me. I stay home every day. I have had to pay women to help me and it is so costly. I am confused, don’t know what to do except cry. lost friends and family who are fed up with my complaining. I am very sad and I worry a lot.

      please help me. Lisa m. 9/13/19

      Reply
  6. John_ please help my love

    My name is John trying to find help for my fiance she has had diarrhea for 10 years she’s been to so many doctors in and out of hospitals she weighs 65 lbs, she’s in bad shape and she needs some help. She’s only 30 and I’m 33 and we’ve been together for 4 years and I want her be healthy and happy again. I have kidney disease myself and I’m dealing with that and I’ve been in the hospital for around 4 weeks and I haven’t been able to be with her, we practically been together every day for the last 4 years. I miss her so much but I’m so worried for her, that she might not make it, if there’s anyone that can help please email me , and let’s get her some help, and figure out what’s wrong please.

    Reply
  7. Peggy

    Our daughter in law is 41 years old. Has always been a go getter, always on the move, always taking care of her family and working full time. Three years ago she started getting sick. It comes and goes. It started out lasting 7-10 days, totally debilitating. 5-6 months later it would come back. Each episode was worse and lasted longer. This most recent episode is in day 52. She finally did get diagnosed at our local hospital as CVS, Cyclical Vomiting Disorder. Sounds simple right? It’s not, it renders you helpless. In constant pain, unable to function at all. After all of the admissions at our local rural hospital, they told her that there’s nothing that they could do for her and sent her home. Last week she was so bad that our son drove her to UPMC in Pittsburgh to get some help. They admitted her and she’s still there. She isn’t any better at all. I wish I could find the words to describe how terrible this very rare disorder is, it’s just so frightening to see a young healthy person go to someone who can’t get out of bed. I did find an on-line forum dedicated to this rare disorder. Please check it out, all of horrible things that a person has to go through and no help in sight. Thank you.

    Reply
  8. Russell Walla

    My name is Russell Walla, i have my best friend (Teresa Shinn) she is 44. She went through a longvabusive relationship with her ex husband! He had PTSD and did alot of horrible things to her. One of the most lasting is her current condition. She has a huge like Tumor on top of her head. If she ever hits it she begins to go into conclusions Also she will randomly have seizures, along with night terrors She went to doctors after she had a couple of sezuires and they told her there was nothing they could do. They never diagnosed her with anything, they put her on seizure meds for awhile but told her she was not epileptic. She has never gone back to try and have a doctor look at her head. She misses out on her 3 kids events in life because she goes through episodes where she “doesn’t feel well” this is usually when a seizure is coming or she will just stuttered alot and get very cold! Blankets will not get her warm and it is like bone chilling pain literally as she describes it
    She has the biggest heart and would do anything for anybody at anytime. I would love for a doctor to see if they can “fix her”!!
    Please consider her as a candidate for your show! Love what y’all are doing keep it up!

    Reply
  9. Sara

    I’ve been sick all my life. In and out of the e.r sometimes 4 times a week.
    I have chronic stomach pain and nausea and also horrible headaches that may be migraines that’ll last a couple months
    I also was born unable to use the bathroom normally and no dr has figured out why…and I’ve passed it down to one of my children!
    I’ve been really sick for 3 years and my whole life I’ve always dealt with some strange stomach issues. Theres way more detail to my case if someone wants to hear it.

    Reply
  10. Zorah

    I’ve had one health issue since I was a child when my dad was alive he had to give me to doctor after doctor even after my mother passed away he flew me for two reasons to Australia one so she could help me cope with my mothers passing into to find out what this pain was when I was little the only relief I got was when he would heat up olive oil and rub my stomach with it . When it would come on with sudden I would get excruciating pain in my abdomen the whole thing and I couldn’t walk straight I have to hunch over stretching it out would be very painful it would cause me to vomit have fever sweats . I am now 42 still with no diagnosis still living through the same pain now it’s lasting anywhere from seven days to two weeks it comes and goes as he pleases and I think I would be a great candidate for the show because no one has given me a diagnosis. I’ve told many doctors many are that I believe it’s Mediterranean fever they tell me know it’s everything else like UTI bladder infection I need my gallbladder out they go in there in a little surprise my gallbladder is fine they say that I have a kidney infection and I got kidney stones eggs and surprise I don’t have either … so help me

    Reply
  11. Brad Elow

    I fractured my t8 rib four years ago. The rib healed in what’s called a malunion. The back part of my rib healed over the front part of my rib. The end of the front part is pressing up against my liver and diaphragm. I have constant pressure on my abdomen. The rib being out of place has caused me to feel like I am being twisted. It affects me from head to toe. I have seen several cardio thoracic surgeons who keep telling me the have never dealt with this type of condition. I have had numerous ct scans, had nerve blocks and the nerves being burned at t789. I feel like I am twisted. It is hard to walk. I need to find a surgeon who has seen this condition and can repair my rib.

    Reply
  12. Jean Lynch

    My boyfriend has had severe pain on his right side since January; He’s in bed 24/7; has had the following:
    Several Xrays
    CT Scans with contrast
    vast blood work
    colonoscopy
    endoscopy and all tests are negative.

    Reply
  13. Dawn Anderson

    Hello, Our son has been suffering for 10 years now and no one knows what is truly wrong with him. He is in the bathroom constantly vomiting and having diarrhea. He has been in to several doctors and each one diagnosed something different. He was put on meds, told it’s all in his head and so on. Our son is 28 years old with a family and I am afraid that he isn’t going to be around much longer. It is affecting him mentally and physically! We tried getting him help but, insurance continually denied tests to be done. The camera pill was denied right away for him. I’m begging and pleading with you for your help in this matter.
    I’m also very I’ll and haven’t had a day without pain in over 20 years. I’m suffering! I can give up any help for me just to have my son cured. I would die for him!
    Please help him!

    Reply
  14. Eunice Dearing

    20 year old autistic male, healthy, in college first year. Sinus infection, multiple antibiotics, starts falling, losses ability to control legs, year later in wheelchair cannot feel or move legs from hip to toes. Neurologists, rheumatoid Dr.s , many Drs but no answers. Fighting vertigo, headaches. He is now 25, still looking for answers.

    Reply
  15. Nicholas

    My name is Nicholas and I have had cryogenic cirrhosis and no dr. Can tell me how I got it. All they tell me is that it is generic from my family but nobody has ever had it. It’s very frustrating as I get really sick every 4 weeks and have to go to the emergency room. I have been in the hospital 42 times in the last 2 and a half years and seen probably 30 different GIs. They said I might have to have surgery for a transplant but because my meld score is so low I will be on the list for years. So my only options are to have a transplant and be on the horrible anti rejection drugs which I researched are awful and your on them for the rest of your life. I asked the GIs what if I get a lot healthier and get my meld score really low. Every one of them say because we don’t know how you got this disease it could come back throughout your life sometimes bad sometimes good. Any suggestions?

    Reply
  16. Rick McEver

    In reference to Lori who appeared on the August 8 episode, Has anyone considered treating her for Lupus? I have had similar symptoms for years.

    Reply
  17. Colleen ruis

    I’ve been sick in and out of the hospital since I had my first son who is now 15 years old. With every pregnancy my health went downhill more. I handed up having a thyroid disorder which is what the doctor said but other symptoms that came along with it didn’t make sense and no doctor was able to diagnose my problem. I had to get my gallbladder removed then I had chronic pain for years with no answers just different medicines thrown to me that ended up making my situation worse and for the past 10 years I’ve just been going downhill physically to the point I have a hard time taking care of my children.
    Now to the point after being in the hospital and almost dying that I don’t take anything anymore except my thyroid medicine in the morning and one regular Tylenol when my pain gets really bad because I’m scared I need to figure out how to help myself and at this point no doctors can I have lost trust in them.
    I’ve written into so many different shows and asked for help now my teeth are starting to deteriorate due to this and throwing up for years and years didn’t help it either and not being able to eat. I know makes it worse. I’ve had a hard time eating for the past 10 years anytime. I would eat, I would always throw up so I got to the point that I just gave up on eating.
    I just don’t know what to do anymore no matter what I just can’t seem to get help because I don’t have good insurance and I’m only 38 years old with three boys and I just want to be there for them. The only thing that I know for sure is I do have a thyroid disorder, it just seems like the doctors that I have seen which is a lot of them, don’t know a lot about it or they guess. I can’t keep having doctors guess and use me as a guinea pig.

    Reply
  18. Sue Kallerud

    I am actually writing this for my granddaughter Santana. She was born March 25th weighing only 2lbs. 1 oz. she has been at Lurie’s Children Hospital since they day she was born and has this rare medical issue known as VACTERAL. She needs heart surgery and she will need her esophagus repaired since it was not fully developed. For the past few weeks she is fighting some severe edema and her doctors are having to research on just where it is coming from and how to control it. I am hopeful that if you do a story on Santana so we might get help from other doctors or maybe other parents to have dealt with this ruthless medical issue.

    Reply
  19. VALEREE CLEGG

    About 10 years ago, I started having pain in my shoulders, hips and knees. It has progressed to my hands, feet , down my back, but my neck is in constant excruciating pain, headaches everyday from the pain in the neck. It feels like I can’t hold my head on my neck, can’t sleep a comfortable night and there is a constant clicking noise in my neck. I’ve had MRI, CT, blood work and all they can come up with is Fibromylgia, but all test show nothing. I had a fusion of the T3-4 level, with no relief. At one point I was unable to stand or walk without excruciating pain. I have no energy, brain fog and refuse to take pain medication, due to the problems associated with these drugs. I have done all holistic types of treatment, with no result. Just really want to know what is wrong with me. Some days I lay in one place unable to move due to the pain and cry, not wanting to continue. Thank you for listening to me.

    Reply
    1. Stefanie

      This sounds like me!!!!! I thought it was lupus for the longest time (still kind of do) but all blood tests were negative, for everything, and no medications worked. At first they thought it was a B12 and D deficiency. I started supplements but the pains still came. Saw two more rheumatologist before I took plaquenil correctly, since it takes a long time to get in your system. It was the only thing that helped the pains subside, besides the help of PT for my neck.
      It’s frustrating to basically live on this medication but it is a god send to the alternative. Still interment pains and still all negative blood work for any test you could think of and all organs were fine. I finally, with the fourth dr, got an MRI on my pelvis which didn’t show much but there was some “cloudiness” which lead her to believe it could be spondylo arthritis. I’ve started taking cosyntex to see if it helps “reboot” my body as it says and get rid of these lasting aches and pains.
      I still am not officially diagnosed because all of my tests are still negative but I praise my last dr who actually filled in the previous drs blanks to come to this conclusion.

      Reply
  20. Adam Moore

    I was bleeding most of blood supply out of my body back in 2013, I went to the bath room, I lost most supply. I am being treated by local hospital in Yuma Arizona. Please help, just hanging on.

    Reply
  21. Dorothy Volpe

    My daughter Rebecca,who is 50 years old, has been suffering from what she believes is Morgellons for almost 3 years. We have gone to every type of doctor and they don’t want to acknowledge or talk about the disease. She has fibers that are on/in her body and in her hair (which she hasn’t cut in 3 years but is still growing). Strangers comment on her hair dancing! She is now seeing a holistic doctor who sees the fibers and is trying to help. The doctor is trying to detox her with diet, essential oils, acupuncture, etc. Rebecca has been on a face book page with many other sufferers and has gotten some help there. She is so frustrated and disheartened by the lack of medical help for her and all of the others that are suffering from this disease. It seems like the CDC named it and then just dropped any further studies on it. She lives in Georgia and is available for anyone who will look at her and hopefully help. Thank you, Dorothy

    Reply
  22. Jimbo

    I have spent 14 years in chronic pain. The pain has come with chronic kidney stones as well. The chronic calcium oxalate kidney stones run in the family and no one knows how to cure the stones or the pain. I have been to over 4 urologists, 2 nephrologists, 2 endocrinologist with no permanent fix. While some might say we can cut out your kidneys, I believe having them may be a good idea. (Sarcasm). I have had god knows how many x-rays, cat scans, and ultrasounds. It affects my life constantly and makes it hard to live a life holding a job. Finding a cure would do wonders for my life because I have to constantly be on pain meds and that’s not living.

    Reply
  23. Joshua Balkind

    I have large bumps that come up on my bottom. They appear to be some kind of cysts. I’ve been to several doctors and each one has diagnosed me with something different. Nothing they’ve prescribed to me has ever done any good. They get quite large and when they bust or leak it gets all over my pants. Would love to find a cure for this problem it’s been with me for as long as I can remember and I am now 49 years old.

    Reply
    1. Rita Sapp

      I have something like that. Had since age 12. Mine was diagnosed as Hidradenitis Suppurativa. There is no cure but I did have laser done on mine and they went away. Thank goodness!

      Reply
  24. Laraine MurphyErickson

    In 2002 I was treated for HCV with the ‘new cure’ Pegylated interferon with Ribavirin for one year. I have since suffered vision changes, severe recurring edema of my lower extremities, I’ve had silent heart attacks apparently and now am medicated for hypertension, I have breathing issues, I have some strange new texture of my tongue, I’m going through skin changes, loss of hair, I’ve zero energy, had five major spinal surgeries, I’m scared. my blue eyes are turning orange rapidly, I am 51 years old this all began during my interferon treatments. I was pulled off early due to complications but wasn’t told what those complications were. I feel that the only way we will ever know what was wrong with me is through my autopsy.

    Reply
  25. Jennifer Sweet

    I have suffered from a debilitating pain in my rectum for 4 years. None of the doctors I have seen could figure it out. I, through my own research, figured out that I have Levator Ani Syndrome, which I am told is rare and not much is known about. After mentioning it to PCP he sent me to a gastroenterologist, which sent me to a colorectal surgeon. There is no cure and not a lot known about it. No pain medication has ever been able to stop the pain. They are going to do botox this month, but there are no primises that it will work and my insurance may deny. Please help me! I can’t live out my life with this kind of pain.

    Reply
    1. Scott Ellis

      Sounds like the same thing I’m going through. I’ve had this pain in my rectum for over a year. I’ve had several procedures, and none worked. The botox was the worst. Severe constipation! Good luck to you.

      Reply
  26. Sharayah Bosch

    I have been diagnosed with lupus then told that was my the case. I have spent the last 7 years looking for a cure for my condition. 9 skin biopsies and multiple blood work tests. I have chronic dry skunk that causes skin sores. A red rash all over my body. I have been through all the major dermatologist in my city and left my city for additional testing. Came back with nothing new but still no cure. I also have hashimotos, endocrine disease but I have been told they are unrelated. I need help . My skin has been affecting my mental state for some time now and I’m at the point of giving up and just living with it the rest of my life . Please help me .

    Reply
  27. shayne scherer

    I have severe nephropathy in my left leg. I have no diabetes and have every test ran with MRI on back and doctors can not figure out why my feet hurt, burn, and have pins and needles in them all the time. Gabapentin does not work.

    Reply
  28. Amy Weidenbacher

    Hi I’m Amy weidenbacher this has been a 10yr nightmare. Please help, 24 hr nerve pain. I cant drive I can barely walk.

    Please help me, the Dr. says I have lyme disease then it’s Charco Marie Tooth now was told not CMT. I would love to attend all my kids soft ball and base ball games. Cant drive at 43 going crazy. I have deformed feet. Use a walker> I also have white matter on my brain they weren’t sure why stroke so they say. I’ts been almost 10yrs, so ready for this nightmare to be over.

    Reply
  29. Jennifer Shelton

    I am a 49 year old female who feels more like an 89 year old. When people mention to me regarding my life , my response is always the same which is , “I don’t have a life , I am just existing only and I cannot wait til the day comes that I finally just don’t wake up one day” I am not joking , I have many health issues from back pain , pinched nerve around my neck/shoulder area which I now have cervical radiculopathy because of and my arm , hand and fingers go completely numb. I have carpal tunnel syndrome. My neck has absolutely no curve at all , it is completely straight so between the pinched nerve and the debilitating Migraines , it is all so painful. I do have other health issues BUT the absolute WORST health issue I have is HASHIMOTO’S Disease and no doctor has been able to help me because they themselves do Not know how to treat it and my TSH range that is supposed to be around a .04 to around a 4.0 , …. varies from 99 to a 187 to a 294 , etc. and no one can help me. When my TSH gets so out of wack , I have been hospitalized and even after being in the hospital for 5 days , my TSH when I was admitted was a 294 and 5 days later I was a 187 and was released from the hospital. After being misdiagnosed for 11 years I did finally find out that Levothyroxine , Synthroid , etc. did Not work on me … a medication called Tirosint did but since I moved from VA to SC , and no one here has ever heard of Tirosint I just get worse each week. My vision is deteriorating , I have started to get blackouts which is new. I used to be able to get rid of my swollen ankles in 2 days but now it is taking 5 days for my feet and ankles to look normal and now my face and eyelids swell so bad it looks like I just went a couple rounds with Mike Tyson in a boxing ring. I could go on and on but I don’t know what good this is going to do or even if anything comes out of typing this. Signed, Hopeless

    Reply
  30. Jamie Hill

    I am 47 years old and was a healthy mother of 2. I woke up 14 years ago with a chronic cough and my life has been a nightmare ever since. I have developed a paralyzed esophagus out of nowhere causing me to live on a feeding tube. My stomach soon became paralyzed after that and I had to be fed directly into my intestines. I have recently found out I’m in intestinal failure at this time. I also deal with an undiagnosed body myositis causing severe debilitating leg pain. There are no answers as to why my body suddenly is shutting down. After 14 years of being told I am too complex a patient for anyone to diagnose. I need help to get my life back. Thank you!

    Reply
  31. Judy Mayo

    I have lupus, arthritis, fibromyalgia, blood clotting factor, thyroid problems, can’t use my left arm dues to falling on it, copd, bakers cyst on the back of my left leg, and osteoarthritis. Please help me. I was in good shape bout seven years ago now it’s hard to even get dressed to go out. It is so depressing to have to live like this.

    Reply
  32. Darren Delape

    I have been unable to find out what is going on with that body. I have had a lot of pain and have been suffering with this for years.

    Reply
  33. Cynthia Farley Fitzpatrick

    I’ve had numerous health issues and no one doctor can tell me what’s happening and if there is light at the end of the tunnel. I want to get on the show “Chasing the cure” to get someone/anyone to give me hope.

    Reply

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